ISPOR AUSTRIA CHAPTER- USING DIGITAL DATA TRANSFORMATION FOR STRATEGIC PATIENT EMPOWERMENT

Author(s)

Moderator: Ernst Leitgeb, -, Patient Representative, Rare Diseases, Austrian National Patient Group Association, Vienna, Austria
Speakers: Noemi Kiss, MSc, Health Economist, Department of Evidence-based Economic Health Care, Main Association of Austrian Social Security Institutions, Vienna, Austria; Beate Jahn, Dipl.-Math. oec. Dr.rer.soc.oec, Assistant Professor, Department of Public Health, Health Services Research and HTA, UMIT - University for Health Sciences, Medical Informatics and Technology, Hall i.T., Austria; Ansgar Hebborn, PhD, Head – European Access Policy Affairs, Global Access, F. Hoffmann-La-Roche AG, Basel, Switzerland; Gottfried Endel, Dr., Practicing Physician and Head of the Evidence-based Medicine and Health Technology Assessment Team, Department of Evidence-based Economic Health Care, Main Association for Austrian Social Security Institutions, Vienna, Austria; Günther Zauner, Dipl.-Ing, CSO of Healthcare Modelling, Department of Simulation Services & Technical Solutions, dwh GmbH, Vienna, Austria

Amplifying the voice of the patient alone does not lead to better care. Strategic patient empowerment (PATEMP) is the prospective collection of patient voices with a mechanism for implementation of findings. Strategic PATEMP makes use of digital data to communicate patient values to stakeholders at different levels. This enables them to make patient centered decisions for the efficient and timely delivery of effective healthcare services in the most appropriate setting. This forum describes PATEMP tools and how different stakeholders can use them strategically. Stakeholders will discuss: government collected patient reported outcomes and experience measures, digital patient-generated health data, patient engagement in HTA and decision analysis, pharmaceutical product development and clinical trial design, and point-of-care level wearables, mobile devices, and online platforms. Presentations will be followed by a discussion open to the audience and moderated by a patient representative.

Conference/Value in Health Info

2019-11, ISPOR Europe 2019, Copenhagen, Denmark
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