VALIDITY OF THE POLISH VERSION OF THE CARERQOL-7D QUESTIONNAIRE AMONG INFORMAL CAREGIVERS IN THE POLISH GENERAL POPULATION
Author(s)
Golicki D1, Baji P2, Prevolnik Rupel V3, Brouwer WBF4, van Exel J5, Zrubka Z6, Gulácsi L7, Péntek M7
1Medical University of Warsaw, Warsaw, Poland, 2Corvinus University of Budapest, Budapest, PE, Hungary, 3Institute for Economic Research, Ljubljana, Slovenia, 4Erasmus University Rotterdam, Rotterdam, Netherlands, 5University of Bristol, Bristol, UK, 6Department of Health Economics, Corvinus University of Budapest, Budapest, Hungary, 7Corvinus University of Budapest, Department of Health Economics, Budapest, Hungary
OBJECTIVES: The CarerQol-7D instrument was developed as a universal tool to measure care-related quality of life of informal caregivers. This study aimed to assess the validity of the Polish version of the CarerQol-7. METHODS: The Polish version of the CarerQol-7D was developed through a process of forward and backward translation, followed by pilot tests. A cross-sectional online survey was performed from December 2018 to January 2019 among a representative sample of the general Polish population (N=1,000). One hundred and fifty informal caregivers were identified (male 50%, mean age 45.6). We tested the construct validity of the CarerQol-7D in terms of clinical, convergent and discriminative validity. The psychometric characteristics of the CarerQol-7D were evaluated in relation to the caregiving situation and the EQ-5D-5L scores. The latter were estimated using TTO/DCE-based Polish and UK value sets. Subgroup comparisons were carried out with Mann–Whitney U and Kruskal-Wallis tests. Spearman correlation coefficients were calculated between variables. RESULTS: Concerning clinical validity, overall CarerQol scores differed significantly (p<0.05) with the type of health problem of the patient (mostly physical: 74.7, mostly mental: 57.5), the duration of informal care (2-6 months: 62.5, 7-12 months: 65.9, more than 1 year: 71.7), and with the overall care experience (rather negative: 55.8, rather positive: 77.7). Regarding convergent validity, the CarerQol-7D overall scores were significantly correlated with the CarerQol-VAS (r=0.522), EQ-5D-5L index scores (for both UK and Polish tariffs) and EQ-VAS of the caregivers (r=0.397, 0.375 and 0.273, respectively). Discriminative validity was supported by significant differences in overall CarerQol scores for the different levels of the seven dimensions of the instrument. CONCLUSIONS: These results support the validity of the Polish language version of the CarerQol-7D, when used in informal caregivers in Poland. Further studies should focus on reliability and responsiveness of the instrument.
Conference/Value in Health Info
2019-11, ISPOR Europe 2019, Copenhagen, Denmark
Code
PMU131
Topic
Patient-Centered Research
Topic Subcategory
Instrument Development, Validation, & Translation
Disease
Geriatrics, No Specific Disease