Integrating Proximity Care in Multiple Sclerosis Patient Management in Italy: The Stayhome Project Case Study
Author(s)
Filippi M1, Gallo P2, Gasperini C3, Marfia GA4, Avolio C5, Bergamaschi R6, Capobianco MA7, Dotta M8, Grimaldi L9, Lus G10, Patti F11, Pucci E12, Quatrale R13, Solla P14, Bandiera P15, Panetta C16, Parretti S17, Lo Muto R18, Pinto L19
1IRCCS San Raffaele Scientific Institute, Milan, Milan, Italy, 2Azienda Ospedaliera Universitaria di Padova, Padova, Italy, 3Azienda Ospedaliera San Camillo Forlanini, Rome, Rome, Italy, 4Fondazione Policlinico Tor Veragata, Rome, Rome, Italy, 5Policlinico di Foggia, Foggia, Foggia, Italy, 6IRCCS Mondino Foundation, Pavia, Italy, 7Azienda Ospedaliera Santa Croce e Carle, Cuneo, Cuneo, Italy, 8ASL Alba-Bra, Alba, Alba, Italy, 9Fondazione Istituto G. Giglio, Cefalù, Italy, 10Seconda Università degli Studi di Napoli, Napoli, Napoli, Italy, 11Azienda Ospedaliera Universitaria Policlinico "G. Rodolico - S. Marco", Catania, Catania, Italy, 12Ospedale Augusto Murri, Fermo, Fermo, Italy, 13Ospedale dell'Angelo di Mestre, Venezia, Venezia, Italy, 14Azienda Ospedaliera Universitaria di Sassari, Sassari, Sassari, Italy, 15Associazione Italiana Sclerosi Multipla, Genova, Genova, Italy, 16IQVIA Solutions Italy S.r.l., Milan, Milan, Italy, 17IQVIA Solutions Italy S.r.l., Peschiera Borromeo, MI, Italy, 18Biogen Italy, Milan, Milan, Italy, 19IQVIA Solutions Italy S.r.l., Milano, MI, Italy
Presentation Documents
Description: StayHome project aims at supporting Centers in the integration of proximity care in the management of MS patients, in line with recent healthcare legislation and investments. First, a mixed method survey has been conducted involving 50 Centers to identify the main improvement areas for proximity care implementation and to build a cross-Center analysis framework. 14 MS Centers in 9 Regions were then involved on a voluntary basis to map the AS IS and define a TO BE care model. Different areas of intervention have been identified (e.g., formalization and digitalization of integrated Hospital – Territory pathways). A Steering Committee, including Key Opinion Leaders, PAG (Patient Association Group) and Scientific Association representatives, supervised progresses and methodologies adopted in the project, including Key Performance Indicators to monitor the patient pathway and a Maturity Model to assess and support MS Centers in the path towards proximity care. More than 150 healthcare professionals, hospital managers and regional stakeholders have been involved with a potential impact for about 14,000 patients.
Lessons Learned: Implementation of proximity care in MS is challenging due to the complexity of the disease. A unique approach to implement proximity care in MS patient pathways results to be suboptimal, due to the impact of regional and local specificities. A bottom-up approach results to be more effective, when designed with healthcare professionals and patient associations, and when hospital and regional managers are onboard. These aspects should be considered before scaling up proximity care models at regional and national level. Anyway, the Maturity Model validated provides building blocks and good practices to support proximity care implementation in MS.
Stakeholder perspective: Provider and PAG
Conference/Value in Health Info
Value in Health, Volume 26, Issue 11, S2 (December 2023)
Acceptance Code
CS21
Topic
Patient-Centered Research
Topic Subcategory
Patient Engagement
Disease
Neurological Disorders, no-additional-disease-conditions-specialized-treatment-areas