THE CURRENT STATUS OF SOCIAL CARE-RELATED QUALITY OF LIFE FOR PEOPLE WITH DISABILITIES IN JAPAN
Author(s)
Yoko Moriyama, PhD1, Megumi Hazumi, PhD2, Michi Miyake, PhD3, Mayui Nara, PhD3, Kentaro Usuda, PhD3, Sosei Yamaguchi, PhD3, Takashi Okada, PhD4, Naoaki Kuroda, PhD3.
1National Institute of Public Health, Wako, Saitama, Japan, 2Nippon Medical School, Tokyo, Japan, 3National Institute of Mental Health, National Center of Neurology and Psychiatry, Tokyo, Japan, 4Fukui Prefecture University, Eiheiji, Fukui, Japan.
1National Institute of Public Health, Wako, Saitama, Japan, 2Nippon Medical School, Tokyo, Japan, 3National Institute of Mental Health, National Center of Neurology and Psychiatry, Tokyo, Japan, 4Fukui Prefecture University, Eiheiji, Fukui, Japan.
OBJECTIVES: Patient-reported outcomes are required for the evaluation of Welfare Plan for Persons with Disabilities by local government aimed to lead independent lives on their own terms, however no evaluation methodology based on the patient-reported outcomes has yet been established in Japan. We are exploring the possibility of using the Social Care-related Quality of Life (SCRQOL) as measured by the Adult Social Care Outcomes Toolkit (ASCOT) as outcome indicators. This study aimed to examine the current status of SCRQOL by ASCOT among people with disabilities having government-issued disability certificate in Japan across disability categories.
METHODS: An online survey was conducted among individuals aged 18-65 years with disability certificates for physical disability certificate; PDC (n=600), rehabilitation certificate; RC (n=112), and mental disability certificate; MDC (n=600). The average SCRQOL scores were calculated for each disability category.
RESULTS: The attributes by disability type were as follows. Gender (percentage of males): PDC72.6%, RC 55.3%, MDC 65.5%; Age (average): PDC 54 years, RC 40 years, MDC 49 years; Use of some type of service (percentage of users): Physical 74.3%, Rehabilitation 75.9%, Mental 94.3%. The mean SCRQOL scores (standard deviation) for those who used these services were 0.82 (0.26) for PDC, 0.68 (0.34) for RC, and 0.64 (0.34) for MDC.
CONCLUSIONS: Using the Japanese version of the ASCOT, we assessed the SCRQOL of individuals holding disability certificates, broken down by type of disability. The age of onset and the characteristics of disabilities vary by type, making comparison difficult. Further validation is required before ASCOT can be applied to cross-Disability Welfare Plan.
METHODS: An online survey was conducted among individuals aged 18-65 years with disability certificates for physical disability certificate; PDC (n=600), rehabilitation certificate; RC (n=112), and mental disability certificate; MDC (n=600). The average SCRQOL scores were calculated for each disability category.
RESULTS: The attributes by disability type were as follows. Gender (percentage of males): PDC72.6%, RC 55.3%, MDC 65.5%; Age (average): PDC 54 years, RC 40 years, MDC 49 years; Use of some type of service (percentage of users): Physical 74.3%, Rehabilitation 75.9%, Mental 94.3%. The mean SCRQOL scores (standard deviation) for those who used these services were 0.82 (0.26) for PDC, 0.68 (0.34) for RC, and 0.64 (0.34) for MDC.
CONCLUSIONS: Using the Japanese version of the ASCOT, we assessed the SCRQOL of individuals holding disability certificates, broken down by type of disability. The age of onset and the characteristics of disabilities vary by type, making comparison difficult. Further validation is required before ASCOT can be applied to cross-Disability Welfare Plan.
Conference/Value in Health Info
2026-11, ISPOR Europe 2026, Vienna, Austria
Value in Health, Volume 29, Issue 12S
Code
PCR119
Topic
Clinical Outcomes, Epidemiology & Public Health, Patient-Centered Research
Topic Subcategory
Instrument Development, Validation, & Translation, Patient-reported Outcomes & Quality of Life Outcomes
Disease
Mental Health (including addiction), Musculoskeletal Disorders (Arthritis, Bone Disorders, Osteoporosis, Other Musculoskeletal), Sensory System Disorders (Ear, Eye, Dental, Skin)