Making a Difference: Identifying Best Practices to Measure the Impact of Patient Engagement

Speaker(s)

Pru Etcheverry, ONZM, Advocacy Answers New Zealand, Auckland, New Zealand, Beyza Klein, MA, Novartis, Riehen, BS, Switzerland, Mabel Crescioni, DrPH, JD, Patient-Centered Outcomes Research Institute (PCORI), Washington, DC, USA and Hayley Chapman, MHS, Patient Focused Medicines Development (PFMD), Oakville, Canada

Presentation Documents

This session goes beyond the 'how-to' of engagement, focusing on the crucial aspect of measuring engagement attributes and accomplishments. Delve into the intricacies of determining when and how to measure the quality, quantity, impact, and overall value of patient engagement in research and/or care. Explore the complexities of assessing return on investment and discuss how establishing standards can enhance the credibility of the field. This session will emphasize methods and approaches for gathering evidence that genuinely reflects patient needs and experiences, making research more pertinent to both innovators and patients. While there is some consensus on what defines 'good' or 'bad' engagement, the need for assessment standards will be considered. The importance of measuring the impact of patient-centered evidence on shaping clinical practices and influencing healthcare policies will also be discussed.

Topic

Patient-Centered Research