Partnering for Progress: Advancing Patient-Centered Evidence in HEOR

Moderator

Alan Balch, MS, PhD, Patient Advocate Foundation and National Patient Advocate Foundation, Hampton, VA, United States

Speakers

Maria Dutarte, European Patients’ Academy on Therapeutic Innovation (EUPATI), Utrecht, Netherlands; Angie Botto-van Bemden, PhD, Musculoskeletal Research International, Holiday, FL, United States; Derick Mitchell, PhD, Dublin, Ireland

This forum is a dedicated session that brings together ISPOR’s key efforts in patient engagement- from foundational milestones to its latest initiatives – to examine how meaningful patient engagement is evolving in health economics and outcomes research (HEOR). The session offers a unique open opportunity for interested stakeholders to reflect on the continuing development of ISPOR’s Patient Engagement in HEOR Initiative, recognizing current achievements, and sharing insights on the future of the field. As patient and public involvement moves from aspiration to expectation across global health systems, this session will spotlight how ISPOR has helped institutionalize the role of patients in HEOR research and decision-making from the establishment of regional roundtables and the Patient Council to convening the ISPOR Patient-Centered Research Summit 2024 and the inaugural ISPOR Patient-Centered Evidence track at ISPOR Europe 2025. Together, these milestones demonstrate how ISPOR has played a leading role in embedding patient perspectives into the science and methods of HEOR. Speakers will explore emerging trends that are reshaping how we define and apply evidence—such as the integration of lived experience into value frameworks, the co-creation of research with patients as true partners, and novel methods to ensure evidence reflects what matters most to patients. With insights from patient representatives, leaders, and researchers, the session will challenge traditional hierarchies of evidence and spotlight how shared decision-making, real-world lived experience, and public involvement are actively shaping regulatory, HTA, and reimbursement landscapes in both high- and low-resource settings. Join us for this important conversation as we work to shape a more inclusive, equitable, and impactful future for patient engagement in HEOR.

Code

029

Topic

Patient-Centered Research