Are We Patient-Centered Yet? Patient Engagement and Patient-Centered Research in HEOR
Moderator: Jessica Roydhouse, PhD, Menzies Institute for Medical Research, Hobart, TAS, Australia
Speakers: Jill Carlton, BMedSci, MMedSci, PhD, School of Health and Related Research, University of Sheffield, Sheffield, UK; Omar A. Escontrias, DrPH, MPH, National Health Council, Washington, DC, USA
In this session, speakers will define patient centricity and engagement; offer strategies for engagement for a range of HEOR study types and contexts; and identify practical and scientific challenges to engagement as well as possible solutions. We will discuss key considerations including engagement when resources may be limited, representative engagement and working with underrepresented groups.
Dr Roydhouse will provide an overview of the topic and the PC SIG’s previous and current work regarding patient engagement. Dr Escontrias will discuss patient engagement and the engagement of underrepresented groups from a patient advocate perspective. He will also describe the numerous resources the National Health Council has developed over the past several years on meaningful patient engagement. Dr Carlton will discuss patient engagement in patient-reported outcome measure development and value/HTA studies (10m).
Polling will be used to capture audience experiences with patient centricity/engagement. Twenty minutes will be reserved for moderated audience discussion, including a Q&A session.
As the PC SIG has developed a definition of engagement in research and is gathering data on the ISPOR community’s use of patient engagement strategies, this session is timely and can inform future SIG work, including contributing to a potential future publication.