Training Patients in Europe for Effective Contribution to Health Technology Assessment

Speaker(s)

Maria Dutarte, MS, EUPATI, Utrecht, Netherlands, Anke-Peggy Holtorf, PhD, MBA, PCIG @ HTAi.org, Basel, Switzerland and Lotte Klim, EUPATI Fellow, EUPATI, Copenhagen, 84, Denmark

Presentation Documents

Education and training preparing patients to effectively contribute to HTA processes need to be easily and widely available in order to support the implementation of the new European Health Technology Assessment (HTA) Regulation ((EU) 2021/2282) with useful and relevant input from patients and patient representatives. The European Patients’ Academy on Therapeutic Innovation(EUPATI) is experienced with patient education and aims to provide accessible, innovative and inclusive education empowering patients and patient representatives to effectively engage and partner with all other stakeholders. EUPATI is now joining forces with various partners, EUPATI National Platforms and trained expert patients to provide the training required for contributing to HTA.

This forum will focus on the type of information and training needs that patients may have to be able to contribute effectively to HTA processes as trusted partners in the context of the new HTA Regulation.

Attendees will be able to contribute to shaping a vision for patient education that enables meaningful patient involvement in the context of the new HTA Regulation. Maria Dutarte (EUPATI) will chair the session. Dr Anke-Peggy Holtorf (HTAi) will introduce the broader context of patient involvement in HTA, how this is adopted in the new HTA Regulation, highlighting challenges and opportunities. Maria Dutarte will present the EUPATI HTA4Patients project and the multi-stakeholder approach taken to design an ad-hoc patient education programme in the field of HTA. Lotte Klim (EUPATI Fellow) will make a case as to why it is important to empower patients in HTA and support them becoming trusted partners. The target audience including patients and patient representatives, researchers from both academia and industry, HTA body representatives with an interest in impactful patient involvement will be able to actively contribute by identifying relevant aspects to include for the patient training material (25 minutes).

Code

254

Topic

Patient-Centered Research