Speaker

Dr. Durhane Wong-Rieger is the president and CEO of the Canadian Organization for Rare Disorders. She holds a Ph.D. in psychology from McGill University and previously served as a professor at the University of Windsor. Internationally, she is president of the Asia Pacific Alliance of Rare Disease Organisations, treasurer of the United Nations Nongovernmental Committee for Rare Diseases, patient advisor to the APEC Rare Disease Network, member of the International Research Consortium on Rare Diseases and RDI-Lancet Commission on Rare Diseases as well as board member of Testing to Targeted Treatments (FT3). She is Co-Founder and Immediate Past Chair of Rare Diseases International. In Canada, she is chair of the Consumer Advocare Network, president and CEO of the Institute for Optimizing Health Outcomes, and chair of the Canadian Heart Patient Alliance. She is currently Co-Chair of the Implementation Advisory Group of Canada’s National Strategy on Drugs for Rare Diseases. A certified health coach, trainer, and frequent lecturer, Dr. Wong-Rieger has authored three books and multiple articles.