Collecting Actionable Evidence on the Full Range of Economic Impacts From Patients and Caregivers: Advancing “Whole Person” HTA

PURPOSE: To educate health economics and outcomes research (HEOR) professionals on applying the principles of the Patient-Centered Economic Impacts Research Framework using methods such as patient experience mapping to collect and incorporate the full range of economic impacts patients and caregivers face into holistic health technology assessment (HTA). DESCRIPTION: HTA traditionally focuses on clinical outcomes and direct costs, but the full range of financial impacts on patients and caregivers are often overlooked. This interactive session aims to demonstrate to the HEOR community ways to include patient-centered costs beyond direct costs and inform prioritization of the most critical economic impacts for future research. We will invite the HEOR community, patients, and caregivers to discuss these impacts and how to measure them in both qualitative and quantitative research approaches. Ms. Ushma Patel will provide an overview of the Patient-Centered Economic Impacts Research Framework, work to date implementing the framework through virtual workshops with stakeholders, as well as her own patient and caregiver perspective of economic impacts. Dr. Elisabeth Oehrlein will provide an overview of qualitative patient experience mapping, including how it can be used in conjunction with quantitative methods to uncover the hidden burdens of patients and families when facing a serious healthcare condition or treatment. Next, Elisabeth will model the patient experience mapping methodology with Ms. Tina Aswani-Omprakash to explore her lifelong struggles navigating Crohn’s disease and other chronic conditions. Finally, Ms. Stacey Kowal will illustrate how patient productivity impacts and spillover effects to informal caregivers are currently being measured in Alzheimer’s disease research. The audience will be invited to participate via polls and group discussion questions about strategies for collecting actionable evidence and prioritizing the most important patient-centered economic impacts.