Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability

Jun 1, 2024, 00:00
10.1016/j.jval.2024.02.016
https://www.valueinhealthjournal.com/article/S1098-3015(24)00088-3/fulltext
Title : Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability
Citation : https://www.valueinhealthjournal.com/action/showCitFormats?pii=S1098-3015(24)00088-3&doi=10.1016/j.jval.2024.02.016
First page : 776
Section Title : PATIENT-REPORTED OUTCOMES
Open access? : No
Section Order : 776

Objectives

The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).

Methods

Caregivers of children with ID (aged 4 to 18 years) completed an online survey, including a proxy-report EQ-5D-Y-5L, the Quality-of-life Inventory-Disability, and disability-appropriate measures corresponding to the EQ-5D dimensions: mobility, self-care (SC), usual activities (UA), pain/discomfort (PD), and worry/sadness/unhappiness. Twenty-one participants repeated the EQ-5D-Y-5L a few weeks later. Test-retest reliability was computed using weighted kappa and intraclass correlation coefficients, and convergent validity using Spearman’s and Pearson’s correlation coefficients.

Results

Caregivers of 234 children completed the survey, with and weak to moderate for UA (.21 to .52).

Conclusions

Convergent validity was generally good; test-retest reliability varied. Children with ID had lower scores on SC and UA than other populations, and their EQ-VAS could fluctuate greatly, indicating poorer and less stable health-related quality of life.

Categories :
  • Health State Utilities
  • Patient-Centered Research
  • Pediatrics
  • Specific Diseases & Conditions
  • Stated Preference & Patient Satisfaction
  • Study Approaches
  • Surveys & Expert Panels
Tags :
  • child
  • Disability
  • EQ-5D-5L
  • health
  • health-related quality of life
  • psychometric
  • well-being
Regions :
  • Asia Pacific (including Oceania)
ViH Article Tags :