UK General Population Utility Values for the SIDECAR-D Instrument Measuring the Impact of Caring for People With Dementia

Aug 1, 2020, 00:00
10.1016/j.jval.2020.04.1827
https://www.valueinhealthjournal.com/article/S1098-3015(20)32062-3/fulltext
Title : UK General Population Utility Values for the SIDECAR-D Instrument Measuring the Impact of Caring for People With Dementia
Citation : https://www.valueinhealthjournal.com/action/showCitFormats?pii=S1098-3015(20)32062-3&doi=10.1016/j.jval.2020.04.1827
First page : 1079
Section Title : PREFERENCE-BASED ASSESSMENTS
Open access? : Yes
Section Order : 1079

Objectives

Dementia affects many people, with numbers expected to grow as populations age. Many people with dementia receive informal/family/unpaid care, for example, from a spouse or child, which may affect carer quality of life. Measuring the effectiveness of health/social care interventions for carers requires a value measure of the quality-of-life impact of caring. This motivated development of the Scales Measuring the Impact of Dementia on Carers-D (SIDECAR-D) instrument. This study aimed to obtain general population values for SIDECAR-D to aid incorporating the impact of caring in economic evaluation.

Methods

Members of the UK general public completed a best–worst scaling object case survey, which included the 18 SIDECAR-D items and EQ-5D-3L descriptions. Responses were analyzed using scale-adjusted finite mixture models. Relative importance scores (RISs) for the 18 SIDECAR-D items formed the SIDECAR-D relative scale measuring the relative impact of caring. The SIDECAR-D tariff, on the full health = 1, dead = 0 scale, was derived by rescaling EQ-5D-3L and SIDECAR-D RISs so the EQ-5D-3L RISs equaled anchored valuations of the EQ-5D-3L pits state from a visual analog scale task.

Results

Five hundred ten respondents completed the survey. The model had 2 parameter and 3 scale classes. Additive utility decrements of SIDECAR-D items ranged from –0.05 to –0.162. Utility scores range from 0.95 for someone affirming 1 item to –0.297 for someone affirming all 18.

Conclusion

SIDECAR-D is a needs-based scale of the impact on quality of life of caring for someone with dementia, with a valuation tariff to support its use in economic evaluation.

Categories :
  • Health State Utilities
  • Instrument Development, Validation, & Translation
  • Mental Health
  • Patient-Centered Research
  • Patient-reported Outcomes & Quality of Life Outcomes
  • Specific Diseases & Conditions
Tags :
  • best-worst scaling
  • carers
  • dementia
  • quality of life
  • valuation
  • visual analog scale
Regions :
  • Global
ViH Article Tags :