Core Domains for a Person-Focused Outcome Measurement System in Cancer (PROMS-Cancer Core) for Routine Care- A Scoping Review and Canadian Delphi Consensus

Jan 1, 2013, 00:00
10.1016/j.jval.2012.10.017
https://www.valueinhealthjournal.com/article/S1098-3015(12)04171-X/fulltext
Title : Core Domains for a Person-Focused Outcome Measurement System in Cancer (PROMS-Cancer Core) for Routine Care- A Scoping Review and Canadian Delphi Consensus
Citation : https://www.valueinhealthjournal.com/action/showCitFormats?pii=S1098-3015(12)04171-X&doi=10.1016/j.jval.2012.10.017
First page : 76
Section Title : Patient-Reported Outcomes
Open access? : No
Section Order : 22

Objectives

The objectives of this scoping review study were 1) to identify core domains and dimensions for inclusion in a person-focused and self-reported outcome measurement system for cancer and 2) to reach consensus among key stakeholders including cancer survivors on the relevance, acceptability, and feasibility of a core outcome set for collection in routine clinical care.

Methods

Following a scoping review of the literature, a Rand Delphi consensus method was used to engage key interdisciplinary decision makers, clinicians, and cancer survivors in reaching consensus on a core patient-reported outcome domain taxonomy and outcome measures.

Results

Of the 21,900 citations identified in the scoping review, 1,503 citations were included in the full article review (380 conceptual articles, 461 psychometric evaluation articles, and 662 intervention studies) and subjected to data abstraction and mapping. Final consensus was reached on 20 domains, related subdimensions, and 45 self-report measures considered relevant and feasible for routine collection in cancer by the Delphi panel (PROMS-Cancer Core).

Conclusions

Standardization of patient-reported outcome data collection is key to assessing the impact of cancer and treatment on the person for population comparison and monitoring the quality of clinical care. The PROMS-Cancer Core taxonomy of domains and outcome measures can be used to guide the development of a patient-reported outcome information system for cancer.

Categories :
  • Literature Review & Synthesis
  • Oncology
  • Patient-Centered Research
  • Patient-reported Outcomes & Quality of Life Outcomes
  • Specific Diseases & Conditions
  • Study Approaches
Tags :
  • cancer
  • consensus
  • health
  • patient-reported outcomes
  • scoping review
Regions :
  • North America
ViH Article Tags :