Sally Okun is Vice President for Policy and Ethics at PatientsLikeMe. Since joining the company in 2008 she has overseen numerous aspects of the site’s development related to health data integrity, medical ontology, patient taxonomy, drug safety platform and the Ethics and Compliance Advisory Board. Sally ensures that patient voice and insight are integrated into diverse health policy initiatives at the national and global level, and is the company’s liaison with external organizations, government and regulatory agencies. She oversees the company’s Research Collaboration Agreement with the FDA and is a member of numerous advisory groups including National Academy of Medicine’s Leadership Consortium on Science and Value Driven Healthcare; Board of Directors for Public Responsibility in Medicine and Research (PRIM&R); Duke Margolis Center for Health Policy Collaborative on Real World Evidence; International Consortium for Health Outcomes Measurement PROMs National Steering Committee. A Registered Nurse, she practiced as a community-based palliative and end of life care specialist for many years. Sally completed her graduate studies at The Heller School for Social Policy & Management at Brandeis University. She was a 2010 Fellow in Biomedical Informatics for the National Library of Medicine and a 2014 Salzburg Global Fellow in New Paradigms for Behavioral and Mental Health.