Patient Organizations Worldwide
North America Europe Asia & Oceania
United States
FDA Patient Network

The FDA Patient Network has been designed from the ground up to focus entirely on patients
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Healthline's Multiple Sclerosis Center

An educational tutorial on understanding, diagnosing, and treatment for MS; breaking news (ex. http://www.healthline.com/health-news/ms-new-3D-scanning-technique-helps-diagnose-ms-fast-100913) and in-depth, doctor-reviewed content. For more information about our rigorous editorial process, to view our board of directors and more, visit the Healthline about page: http://www.healthline.com/health/about-healthline.
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Partnership for Patients

The Partnership for Patients: Better Care, Lower Costs is a new public-private partnership that will save lives, prevent injuries to millions of Americans, and improve patient outcomes. It will also save billions of dollars that will help put the nation on the path toward a more sustainable health care system.
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The Empowered Patient Coalition

The Empowered Patient Coalition is dedicated to providing an unprecedented level of information, resources and educational support to the public. The Coalition is committed to promoting a culture of transparency, meaningful interaction and active participation that will allow patients and their advocates to assume a greater role in improving the safety and the quality of their health care.
www.empoweredpatientcoalition.org

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National Health Council

Mission
The mission of the National Health Council is to provide a united voice for people with chronic diseases and disabilities.

Vision
We envision a world in which all people receive health care that meets their personal needs and goals.

Goals

  • To improve the health of all people
  • To increase support for health research
  • To strengthen the community of patient advocacy organizations

www.nationalhealthcouncil.org

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Cystic Fibrosis Association of Ireland

Cystic Fibrosis Ireland (CFI) - We are here to help. We were established by parents in 1963. We provide advice and other supports, we advocate to improve services and we support research. We can put you in touch with other parents and you can talk to our staff about any concerns. Three of our staff are people with CF.

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Das Lebenshaus

(non-profit organization for patients with rare Solid tumors: GIST, sarcomas, kidney cancers)
www.daslebenshaus.org

European Patients' Academy on Therapeutic Innovation (EUPATI)

Starting on 1 February 2012, the European Patients' Academy on Therapeutic Innovation (EUPATI), patient-led academy will develop educational material, training courses and a public Internet library to educate patient representatives and the lay public about all processes involved in medicines development. Topics will include personalised and predictive medicine, design and conduct of clinical trials, drug safety and risk/benefit assessment, pharmaco-economics as well as patient involvement in drug development.

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European Patients' Forum (EPF)

EPF is the umbrella organisation of pan-European patient organisations active in the field of European public health and health advocacy.
EPF's vision is high quality, patient-centred, equitable healthcare for all patients throughout the European Union.

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Irish Platform for Patients' Organizations, Science and Industry (IPPOSI)

A unique partnership of Patient Groups/Charities, Science and Industry on the island of Ireland. As a patient led partnership, the platform provides a structured way of facilitating interaction between the three key membership groups (patients' organisations, scientists and industry (and where possible with State Agencies) on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland.
http://www.ipposi.ie/

Latin America
ICORD

International conference for orphan drugs and rare diseases

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Middle East / Africa