ISPOR PATIENT REGISTRY SPECIAL INTEREST GROUP (PR)

Goal:
To develop good research practices on characterization, classification, strategy, design, analysis, and application of patient registries and the data they generate in health care decisions.

Background:
Patient registries are prospective, observational cohort studies of patients with or at risk for a particular disease and/or receiving a particular treatment/intervention. They can be used for understanding natural history, assessing or monitoring real-world safety and effectiveness, assessing quality of care and provider performance, and assessing cost-effectiveness. Background continued…

Working Groups:

Patient Registry Taxonomy Working Group

Work Products:

•	Use of Patient Registry Data in Evaluating Patient Reported Outcomes Citation: ISPOR CONNECTIONS Vol.15 No 4: July-August 2009
•	Analysis of Effectiveness in Patient Registry Data Citation: ISPOR CONNECTIONS Vol.15 No 3: May-June 2009
•	Use of Patient Registries: Results of the ISPOR Patient Registry Special Interest Group Survey Citation: ISPOR CONNECTIONS Vol.11 No 6: December 15, 2005

Activities