Current Project:
ISPOR Taxonomy of Patient Registries: Classification, Characteristics & Terms

The Patient Registry Taxonomy describes characteristics & classification of registries and terms used in the design, development, implementation of registries and terms used in the analysis, reporting & publishing of registry data.  Each term will include a brief definition, a broader explanation, the associated values & uses, and conclude with a discussion of issues or conflicts related to the term.  The target audience is health care professionals, students and decision-makers, as well as outcomes research practioners.

If you are interested in reviewing a section(s) of this book, please email Elizabeth Molsen (emolsen@ispor.org). 

Expected Publication: May 2010

Project Team 1: Characteristics & Classification of Patient Registries
Chair: Dimitris Polygenis PharmD

Project Team 2: Design, Development & Implementation
Chair: Eric Gemmen
Members: Elizabeth Hernberg Stahl MSc; Yvonne Lis PhD; Kathryn Starzyk MSc, BA;
Gabriel Sandblom MD, PhD

Project Team 3: Analysis
Co-chairs: Chris Blanchette PhD, MS, MA & Shital Kamble MS, PhD(c)
Members: Donatus Ekwueme PhD; Alex Exuzides PhD; Carl Gibbons BSc; Eric Gemmen;
Joanna Lis PhD; MSc

Project Team 4: Reporting & Publishing
Co-chairs: Kirsten Hall Long PhD & Diana Frame MS
Members: John Ellison MS; Siva Narayanan MS, MHA