Chair: Renée J. Goldberg Arnold PharmD RPh, President & CEO, Arnold Consultancy & Technology LLC and Adjunct Associate Professor, Community and Preventive Medicine, Mount Sinai School of Medicine, New York, NY

2008 & 2009 Presentations

Current Project

The ISPOR BOOK: Reliability and Validity of Data Sources for Outcomes Research & Health
and Disease Management

The ISPOR Health & Disease Management Special Interest Group is finalizing this handbook for health and disease management practitioners, payers, decision-makers and students.  The book provides a comprehensive overview of the available U.S. data sources, including an assessment of their reliability and validity, methods used to examine these data, and approaches for experimental and retrospective research designs.  A chapter on data adaptation & transferability and the ISPOR International Digest of Databases conclude the book.

Publication expected in May 2010

If you have any questions, please email Elizabeth Molsen, ISPOR Health & Disease Management
SIG Liaison, (emolsen@ispor.org).

Section and Chapter topics will include: 

1. Claims & Medication Databases
   Section Co-Editors: Renée JG Arnold RPh, PharmD; Iftekhar Kalsekar PhD
   Section team members: Sanjeev Balu PhD, MBA; Mireya Diaz PhD; Tao Fan PhD, MS; Lisa Mucha PhD;
   Bijal Shah PhD; Heidi Waters MS, MBA
   Claims & Medication Databases Section Outline
   
   
2. Electronic Medical Records & Medical Charts
   Section Co-Editors: Ryung Suh MD, MPH, MBA and Carla Zema PhD
   Section team members: César Abicalaffe MD, MSc, MBA; Jaspal Ahluwalia MD, MPH; Farrokh Alemi PhD;
   Carl Asche PhD, MSc, MBA; Brent R. Gibson MD, MPH; Sarah Johnson; Edward Kim MD, MBA; Shivaani Prakash;
   Qayyim Said, PhD
   Electronic Medical Records & Medical Charts Chapter Descriptions
   
   
3. Patient-Reported Outcomes (PROs) & Other Self-Reported Data
   Section Co-Editors: Robin Turpin PhD and Lisa Mucha PhD; Anandi Law PhD
   Section Team Members: Ljubica Besker MD, PhD; Mark Bounthavong PharmD; Larry Goldberg MD, MBA; Teresa Hartman MLS;
   I-Chan Huang PhD, MSc; Sue Jennings MAEd, MPH, PhD; Anandi Law PhD; Lisa Mucha PhD; Jayashri Sankaranarayanan PhD, MS;
   Jane Speight CPsychol, AFBPsS, FRSM; Gergana Zlateva PhD
   Patient Reported Outcomes (PROs) & Other Self-reported Data Outline
   
   
4. Alternative Population-based Data Sources
   Section Co-Editors: Kristen Migliaccio BS and Chris Frei PharmD, MSc
   Section team members: Renee G. Arnold RPh, PharmD; Christopher Blanchette PhD, MS, MA; William Crown PhD;
   Tammy Curtice PharmD, MS; Frank Ernst RPh, MS, PharmD; Teresa Hartman MLS; Mariam Hassan DrPH; Krista Payne MEd;
   Hans Petersen MS; Dennis W. Raisch RPh, PhD; Jayashri Sankaranarayanan PhD, MS
   Alternative Population-based Data Sources Outline
   
   
5. Statistical Adjustments/Approaches
   Section editor:  Joel Hay PhD
   Section team members: Chenghui Li BS, MA; Roger Luo PhD; Nalin Payakachat MSc, PhD; Pedro Plans Rubio MD, MSc, MBA; Ashish Parekh MS; Hans Petersen MS; Ebere Onukwugha PhD; Qayyim Said PhD
   Statistical Adjustments/Approaches Outline
   
   
6. International - Health & Disease Management Around the World
   Section Editors: Oliver Mast MSc & Elizabeth Molsen RN
   Section team members: Authors listed by country on outline webpage
   INTERNATIONAL - Health & Disease Management Around the World Outline